Stories of Hope

Meet these inspiring individuals whose stories can offer hope to the Huntington's disease (HD) community.

chapter 6: supporting Awareness

Hiren P., who supported his brother through life with Huntington’s disease (HD) and now dedicates himself to raising awareness for the HD community.
2025HIREN P.CARE PARTNER STORIES

“It's helpful just knowing that you're not alone. Everybody's story is different, but you can find hope in knowing there's a bigger community, that you're a part of this big family.”

read hiren’s story

chapter 5: Sharing Strength

Tanita A., a patient living with Huntington's disease (HD) who has become an author and HD awareness speaker.
2025TANITA A.PATIENT STORIES

“Everyone's story is unique, but to be able to hear from different perspectives and different lenses is important and can help.”

read TANITA’s story

chapter 4: FINDING COMMUNITY

Rashawnda J., living with Huntington's disease (HD), finds connection and support while attending an event dedicated to raising awareness for HD.
2024RASHAWNDA J.PATIENT STORIES

“My first thought was the life I had planned is over, but now I’m learning I just have to go about it in a different way.”

READ RASHAWNDA’S STORY

chapter 3: Never Losing Hope

Therese C-M and her husband, who she cared for throughout his journey with Huntington’s disease (HD).
2024THERESE C.-M.CARE PARTNER STORIES

“Hope is a powerful human emotion and it’s critical to our future. It helps us be resilient and strong.”

Read Therese’s Story

chapter 2: leaning into hope

Don P., who found strength and community through yoga as he supported his wife following her Huntington’s disease (HD) diagnosis .
2023DON P.CARE PARTNER STORIES

“You can’t run from HD. You have to turn and face it and lean into it. And if you try to lean into it alone, you’re going to get tired fast.”

read don’s story

chapter 1: finding strength

Eva R. and her mother, who she supported after Huntington’s disease (HD) diagnosis.
2023EVA R.CARE PARTNER STORIES

“I decided, ‘I'm going to be an advocate for my family and for others. I'm really going to make an impact. I'm going to take this and make it a positive.’”

read eva’s story
 
 
 
 
 
 
 
 
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