Though Kathy has since passed, the community we built of friends, family, and HDSA helps me continue to find hope and keep her memory alive. I’ve found that you can’t run from HD. You have to turn and face it and lean into it. And if you try to lean into it alone, you’re going to get tired fast.
Today, I am a certified yoga instructor, and I host an annual yoga event to fundraise for HD research in addition to sitting on the Michigan chapter board of HDSA. Through my certification with Yoga Moves MS, I teach yoga to both people who are living with mobility impairments as well as others. Yoga continues to be my connection and my commitment to Kathy. It has continued to help me open up to those around me and accept support—even with the things I don’t ask for or don’t realize I need. While there were many lows, the moments of being able to speak authentically and honestly with people will always be the highs.
My advice to other HD care partners and families is to understand that a diagnosis is only a piece of the puzzle. The rest of the puzzle is how you support each other and accept support from others. Through a strong network, you can feel gratitude even in the most difficult moments.