Take a closer look at Huntington’s disease (HD)

Meet our HD advocate Will Forte and his brother-in-law, Doug. Doug is diagnosed with HD. For many like Will, Doug, and their family, an HD diagnosis can be overwhelming and confusing. To help ease that burden, let's take a closer look and learn more about life with HD.

LEARN MORE ABOUT THEIR STORY

Here you’ll find information, inspiration, and resources to help you understand what to expect with HD chorea and how to talk to your healthcare provider about preserving independence for as long as possible.

Symptoms of Huntington's disease (HD) chorea can complicate everyday tasks, like washing dishes.

HD symptoms fall into 3 categories—motor, cognitive, and emotional—which can change in severity over time.

WHAT TO EXPECT WITH HD

Learn about how chorea affects
those living with HD, their loved
ones, and their care partners.

ABOUT HD CHOREA

Everyday tasks, like folding laundry, can be difficult with symptoms of Huntington's disease (HD) chorea.

Huntington’s disease (HD) chorea planning quiz

90% of people with HD will develop chorea.
Use the HD Chorea Independence Planner to help plan for daily challenges associated with these movements and maintain independence for as long as possible.

EXPLORE THE HD CHOREA INDEPENDENCE PLANNER

It's important to plan ahead for Huntington's disease (HD) chorea to preserve your independence.

Find guidance on how to talk to your healthcare provider about HD chorea and its impact on your daily life. Use the HD Chorea Discussion Guide to help start the conversation.

DOWNLOAD HD CHOREA DISCUSSION GUIDE

Learn about inspirational individuals who shared their stories about Huntington’s disease (HD) chorea.

Discover stories from real people with HD and care partners who found hope and strength in the HD community.

see their stories

STAY INFORMED

There are many avenues of support for people with Huntington's disease (HD) and their care partners.